Celine Dion soon to be cured thanks to French researchers? This appeal could advance research

Suffering from stiff person syndrome, Céline Dion has the opportunity to help advance research into the rare pathology from which she suffers. This is why Christian Jorgensen, director of the IHU in Montpellier, appealed to him.

It was an announcement that shocked her fans and the music world. It was December 2022 when, after several cancellations of concerts in Las Vegas, Celine Dion declared, through a video published on social networks, that she suffered from stiff person syndrome. “I was diagnosed with a very rare neurological disorder called in English “Stiff-person syndrome”, which affects approximately one person in a million. We do not yet know everything about this rare disease, but we now know that it is the cause of the muscle spasms I suffer from“, she declared.

Since then, the singer has led a fierce fight against disease. An exhausting daily life that she decided to share in the documentary entitled I am Celine Dion, currently available on Prime Video. The opportunity for the public to have a sincere and intimate insight into the singer’s new lifefar from the stages of the whole world.

Céline Dion ill: this action by a university hospital director which revives hopes of recovery

Many people were upset by the film showing one of the biggest struggles of Celine Dion’s life. For this reason, Christian Jorgensen, director of the IHU of Montpellier, recently launched an important appeal on France Blue Heraultasking the artist to participate in funding research into the rare disease from which she suffers.

“If someone, today, arrives with 10 million euros and says to me ‘make me a biomedicine’, I will do it”he declared on the airwaves of our colleagues. “I think that for her, 10 million euros is not much, and it is not a joke”he added, specifying in passing that given the rarity of this syndrome, affecting only around fifty people in France, almost no researchers have looked into it. “It’s a market that interests no one”he assured. We will now see if René-Charles’ mother will hear this call…